Adenocarcinoma of unknown primary

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TheVrolok

Lifer
Dec 11, 2000
24,254
4,092
136
Well I am still here, Cancer remains stable, just trucking along trying to cope with Immunotherapy side effects. Don’t get me wrong, I am so freaking grateful... four years on this drug but I would be lying if I said it’s like a walk in the park.

My Oncologist says I am a rock star, of the people this drug works for, only 14% make it to four years....well I gotta get to five at least, still waiting for the perfect smartphone so I might be here awhile
So glad to hear an update! Your strength is truly inspiring, and I appreciate your sharing your journey.
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,207
2,472
126
www.theshoppinqueen.com
I skipped Friday’s treatment, call me a whimp but the SE’s are mounting. Aching joints, dry, painful eyes & all over body spasms that hurt so bad I want to scream. Hoping 2 weeks off helps.

Next moth neck & chest CT, annual brain MRI.

Think kind thoughts please, I have been a tired, hurting unit
 

DAPUNISHER

Super Moderator CPU Forum Mod and Elite Member
Super Moderator
Aug 22, 2001
31,191
29,726
146
I skipped Friday’s treatment, call me a whimp but the SE’s are mounting. Aching joints, dry, painful eyes & all over body spasms that hurt so bad I want to scream. Hoping 2 weeks off helps.

Next moth neck & chest CT, annual brain MRI.

Think kind thoughts please, I have been a tired, hurting unit
You hang in there! You are fighting, and fighting leaves you beat up. The only thing for it is to bite down on your mouth piece and come out swinging round after round, the way you have been doing it. It is ok to rest between bouts. You got this, and we are all in your corner.

Sending positive energy your way.
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,207
2,472
126
www.theshoppinqueen.com
You hang in there! You are fighting, and fighting leaves you beat up. The only thing for it is to bite down on your mouth piece and come out swinging round after round, the way you have been doing it. It is ok to rest between bouts. You got this, and we are all in your corner.

Sending positive energy your way.

I just hope I live long enough to see treatment more specific to my tumor. Come on new CAR-T’s: One thing the SE’s tell us is that my immune system has been activated, the brakes are off so to speak Praying a break eases things a bit...we will go with the option of low dose prednisone if we need to as it doesn’t impact treatment but that’s a choice I would like to delay as long as I can.
 

BoomerD

No Lifer
Feb 26, 2006
65,627
14,018
146
Don't forget...a nice theraputic kick in the junk for Red...I promise it will make you feel better...and be sure to tell him I recommended it.
 
Reactions: highland145

Number1

Diamond Member
Feb 24, 2006
7,881
549
126
Knock on wood but the body spasms seem to have stopped...just that one SE stopping is such a relief. The pain was so, so bad from that, words cannot describe. Imagine having Charlie horses in your legs, feet, hands & rib cage all at the same time

Sad to hear this Geek, can't they help you with narcotic?
 

Number1

Diamond Member
Feb 24, 2006
7,881
549
126
Could I visit you. Where are you at. I live in Canada, Sydney, Nova Scotia.
 

Perknose

Forum Director & Omnipotent Overlord
Forum Director
Oct 9, 1999
46,737
10,271
146
Knock on wood but the body spasms seem to have stopped...just that one SE stopping is such a relief. The pain was so, so bad from that, words cannot describe. Imagine having Charlie horses in your legs, feet, hands & rib cage all at the same time
Ugh, Jean, that sucks, to put it mildly.

I'd say, from what I know, that you've had a star-crossed life, in wild ways both welcome . . . and not so welcome.

Shine on, you crazy diamond!
 
Reactions: Geekbabe and Ken g6

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,207
2,472
126
www.theshoppinqueen.com
After becoming increasingly sick all week, spent the day at Mass General, Chest X Ray, blood draws, blood cultures. I lost 5 pounds, was dehydrated & have pneumonia for starters. Got IV fluids, antibiotics.

I am miserable & now have a stomach ache from the Z pack, something good needs to happen around here. Who the hell gets pneumonia in August?
 

lxskllr

No Lifer
Nov 30, 2004
59,099
9,534
126
Sorry your having a tough time of it. I'm sick myself. No pneumonia, but I feel pretty bad, and I never get sick. I think it was caused by overheating. It happens. Hope you get better soon!
 

BoomerD

No Lifer
Feb 26, 2006
65,627
14,018
146
Sorry to hear you feel like crap. You should REALLY try kicking Red in the junk for therapeutic reasons...trust me...it will make you feel MUCH better...
 

Perknose

Forum Director & Omnipotent Overlord
Forum Director
Oct 9, 1999
46,737
10,271
146
Sorry to hear you feel like crap. You should REALLY try kicking Red in the junk for therapeutic reasons...trust me...it will make you feel MUCH better...
To make sure you hit a home run, Jean, elevate your launch angle. Then report back to us with your exit velocity. Remember, hard hit balls are the key to scoring big.

Also, in the illustrious words of Billy Bob Hallmark, Get Well Soon! That's an order!
 

BudAshes

Lifer
Jul 20, 2003
13,971
3,307
146
Sorry to hear you feel like crap. You should REALLY try kicking Red in the junk for therapeutic reasons...trust me...it will make you feel MUCH better...
To make sure you hit a home run, Jean, elevate your launch angle. Then report back to us with your exit velocity. Remember, hard hit balls are the key to scoring big.

Also, in the illustrious words of Billy Bob Hallmark, Get Well Soon! That's an order!

I think you 2 spend more time thinking about Red's junk than Geekbabe. Maybe she should be worried
 
Reactions: Captante

BoomerD

No Lifer
Feb 26, 2006
65,627
14,018
146
I think you 2 spend more time thinking about Red's junk than Geekbabe. Maybe she should be worried

It could just be that no one needs a good swift kick in the junk more than Red Dawn...and if it helps GB feel better.........
 

TheVrolok

Lifer
Dec 11, 2000
24,254
4,092
136
After becoming increasingly sick all week, spent the day at Mass General, Chest X Ray, blood draws, blood cultures. I lost 5 pounds, was dehydrated & have pneumonia for starters. Got IV fluids, antibiotics.

I am miserable & now have a stomach ache from the Z pack, something good needs to happen around here. Who the hell gets pneumonia in August?
A mere bump in the road God willing! Silly August Pneumonia, just like Christmas in July.

Get well soon!
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,207
2,472
126
www.theshoppinqueen.com
A mere bump in the road God willing! Silly August Pneumonia, just like Christmas in July.

Get well soon!

Just praying my port isn’t infected, they had a fair bit of trouble with it today,lots of heparin flushing. They did cultures via the port on my right side & found a magician to access a vein on the left side in my arm. Praying the port is okay, otherwise I am septic & it needs to come out.
 

BoomerD

No Lifer
Feb 26, 2006
65,627
14,018
146
Just praying my port isn’t infected, they had a fair bit of trouble with it today,lots of heparin flushing. They did cultures via the port on my right side & found a magician to access a vein on the left side in my arm. Praying the port is okay, otherwise I am septic & it needs to come out.

Damn...that doesn't sound good...crossing my fingers for you.
 
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